Tove-Lise sin berättelse

Jeg var en aktiv 16 åring som trente mye og konkurrerte i langrenn. Hverdagen bestod av skolearbeid, kvelds jobb, kjæresten/venner og trening. Jeg hadde trent på mandag & tirsdag og jobbet på onsdag etter skolen. Det var torsdag 21 Mai 1981 og etter skole dagen var jeg en kvikk tur i Sandvika med faren min. I fire tiden møtte jeg kjæresten for å spille litt basketball og vi hadde planer om å være sammen på kvelden men etter en kort stund på basketball banen følte jeg meg veldig sliten og slapp og bestemte meg for å dra hjem for å hvile litt.

På fredag morgen følte jeg meg ikke noe bedre, var veldig slapp, hadde sterk hode pine og høy feber, så jeg ble hjemme fra skolen. Mamma holdt seg hjemme fra jobb og var bekymret for hvor slapp jeg var. Rundt tolv tiden ringte hun legevakten og på den tiden hadde legene hjemme besøk og legen kom ett par timer senere. Han funderte om det var mulig at jeg hadde hjernehinnebetennelse/meningitt, jeg hadde som sagt feber, vondt i hodet men ingen andre symptomer på ettermiddag. Han ga mamma beskjed om å ringe om situasjonen forverret seg. Mamma og pappa var bedt på fest den kvelden og jeg kan takke mine foreldre at de ikke gikk for at jeg er her i dag. Pappa var borte noen timer og kom hjem ettersom på dette punktet var de veldig bekymret for meg. Rundt seks tiden på kvelden var jeg i omtåket bevissthet/medtatt allmentilstand og begynte å krangle med mamma om mine studier og informerte henne jeg ikke behøvde ta eksamen som skulle finne sted to uker senere (dette er noe jeg har blitt fortalt senere ettersom jeg har små korte minner fra den kvelden) Jeg begynte å føle meg kvalm og fikk blødning i huden med små utslett av røde prikker over hele kroppen og nakken min ble helt stiv. Mamma ringte til legevakten og ambulansen kom ett par timer senere. Det siste jeg husker er når jeg lå på båren og ble bært ut av huset. Det var en litt mer voksen og en ung kjekk ambulanse sjåfør husker jeg, mens de bar meg opp trappene fra huset til ambulansen ble jeg veldig kvalm og kastet opp over den litt mere voksne sjåføren , han var ikke særlig fornøyd med meg og kommenterte sint hvorfor sa du ikke ifra at du skulle kaste opp. Dette er det siste jeg husker.

Jeg var innlagt på Bærum sykehus og var uten bevissthet i to dager. Pappa fortalte meg senere at legen hadde kommentert med at de trodde enn stund at jeg ikke skulle greie meg. Jeg er takknemlig og glad det gikk bra selvfølgelig, det tok en stund før jeg forstod hvor alvorlig det hadde vært. Jeg var innlagt fredag 22 Mai og kom hjem fra sykehuset Mandag 1 Juni (10 dager) . Jeg vet ikke sikkert men antar siden jeg var veltrent at dette kanskje hjalp, tre uker senere var jeg på språkreise til England med min best venninne.

Jeg vil også kommentere at 2 år senere når jeg var russ fikk jeg symptomer som minnet om hvordan jeg hadde følt meg før jeg fikk hjernehinnebetennelsen og ble veldig bekymret. (hodepine, feber, slapp, ikke noen flere symptomer) Jeg tok kontakt med akutten og ettersom jeg hadde hatt hjernehinnebetennelse tok de mine bekymringer alvorlig. De tok en benmargsprøver og jeg ble innlagt på Bærum sykehus i en natt men heldigvis var resultatet negativ og jeg hadde en vanlig forkjølelse. Men helse vesenet tok dette alvorlig.

Tove-Lise Acker


Hans story

Hans woke up on the morning of New Year’s Eve 2016 not feeling particularly well

As he was hosting a New Year’s Party at home in the evening, he chose not to inform us, probably worried we would suggest he cancelled the party.

In the afternoon he got a lot worse, high temperature, headache and vomiting. We called the emergency services 17:35 where we were told it was the flu.

In the early morning, a rash was beginning to appear on his skin. He had a shower and called the emergency services again 05:14. They did not recognize the symptoms, so we were asked to drive him to hospital for further examinations and he was admitted at 06:37.

On arrival they immediately suspected he had meningitis and transferred him to intensive care at 07:28. In intensive care he had his first heart-failure at 11:22 New Year’s day. They fought for him for 14 minutes getting the heart to beat on its own for a couple of hours before the next heart failure happening at 14:00. This time it took 21 minutes to get the heart back, and then only for 20 minutes until the 3rd heart-failure. From that point on circulation and respiration were managed.

He was transferred to a hospital with a heart/lung machine where he arrived at 15:38. They stopped treatment and declared him dead at 15.58.

We held a service for him on the 14th of January 2017. In the speech for him we highlighted his sense of fair play and his ability to connect with and relate to people around him. This was born out by the presence of over 200 of his friends mainly from school and football.

We invited everyone to write a last message to Hans on the coffin before it was carried out to the hearse and driven for cremation. His 2 brothers and 8 other best friends were pall-bearers.

Had we known then, what we now know, about meningitis, we would never had accepted the original brush-off calling it a flu.

In his spirit we join MRF and other organisations working to raise the awareness of symptoms and signs. We are forever crushed by our loss but with Hans in our hearts we'll do everything in our power to save the next.

Ivar Petersen January 2019


Om jag hade vetat.....

Meningit - En global fråga


Gabriellas historia - ”Flickan med plastfötterna”

Gabriella smittades av mördarbakterie i 2018. Mamma varför har jag plastfötter? Det började med vanlig feber – men inom loppet av några timmar var Gabriella Esers tillstånd livshotande – och för att överleva tvingades hon amputera båda sina ben.

Tusentals följer 5-åriga Gabriella Eser från Hovsjö på Instagram där familjen delar med sig av hur dotterns liv förändrats för alltid. Ett år efter det dramatiska insjuknandet vandrar hon vidare i sina regnbågsfärgade plastben.

Gabriella strider nu för rätten till anpassad förskoleplats. Efter att femåriga Gabriella Eser från Hovsjö tvingats amputera sina ben i fjol, så kunde hon inte gå kvar på sin gamla förskola. Istället har hon hållits hemma i väntan på att Södertälje kommun ska hjälpa familjen med en anpassad lösning – och nu har de väntat i över tio månader.

Södertälje kommun medger nu allvarliga brister i hanteringen – men det är först efter att SVT börjat ställa frågor. Då kopplas den ansvariga chefen Anna Gannå in. I klippet här beklagar chefen sig – dock kan hon inte ge besked om när en lösning där Gabriella kan börja på förskola med andra barn, kan bli aktuell. Kommunen ser nu över möjligheten till annan barnomsorg såsom dagmamma.

Garantid: fyra månader - Skolverket understryker att kommunen är skyldig att ordna förskoleplats eller en anpassad lösning inom garantitiden som är fyra månader. – Ett barn i förskolan ska få det stöd som barnets speciella behov kräver om det av fysiska, psykiska eller andra skäl behöver särskilt stöd i sin utveckling, säger Emelie Högberg, undervisningsråd på Skolverket.

Länk till Expressen som skrev om Gabriella i oktober 2019


Mening UF - stödjer meningokocker sepsis

Mening UF - Varför vi valt att stödja just meningokocker sepsis är för att vi har en personlig koppling till sjukdomen. Christines son Mathias gick bort i denna fruktansvärda sjukdom. #meningokocker #ufgbg #uf

Vi säljer datorfodral i förmån till forskning om sjukdomen meningokocker sepsis som är en vanlig sjukdom bland oss unga. Följ med på våran resa genom att följa vårt konto!

Kolla in den jättefina reklamfilmen på instagram

Mening UF tilldelat diplom för Årets UF 2020!


Mathias story

This is the story of my son Mathias, who was just two weeks short of turning 18, and it started with a tick bite on his stomach on a Wednesday morning in July this summer while we were playing tennis.

A tick bite is nothing unusual to happen in Sweden during the summer so we just had to keep it under observation.

The following days went on as normal with him relaxing in the sun (we were on vacation at our summerhouse), playing tennis, going to the gym and hanging out with his friends in the evenings etc.

On Sunday late morning he woke up not feeling 100% OK (no fever at this point), so we all thought he was coming down with a cold or the flu. Later on during the day when I checked on him I felt that he was getting warmer, but not alarmingly warmer. Around 4pm when I checked on him again he was warm and he was worried that it had something to do with the tick bite that he got on the Wednesday. I checked which health care center nearby that was open on a Sunday afternoon and off we went.

In the car he was complaining that he was freezing and he was getting warmer, but to me that was just normal symptoms of the flu. At the health care center he vomited once (mostly water) and was complaining that the whole body was hurting, never mentioning anything specific about the head or the neck. The fever had risen to 39,9 degrees at this point which is high, but not extreme if you have the flu.

He was checked by a doctor and his blood pressure, heart rate, oxygen saturation, the bacterial test etc. were completely normal at this point around 6pm on Sunday. We were told to go home and treat it like the flu and that he should eat ice cream, drink a lot of water, sleep and relax. And the tick bite was nothing to worry about.

Around 9pm on Sunday he ate ice cream, went back to bed and vomited shortly after. None of us thought it was strange as it can happen when you have the flu (now I know better). I checked on him almost every hour until I went to bed myself and told him to call me at any time during the night if he was not feeling well.

He called me twice during the night, at 3am and 5am, and I went into his bedroom and checked on him. He was still warm and did not feel very well. I gave him something to get the fever down and he went back to sleep.

On Monday morning I went up at 7am as I was going to play tennis at 8am and checked on him again. Little less warm and he was hungry and wanted ice cream. I told him that I was going to get it for him and went to the kitchen where he suddenly was behind me. He sat down at the kitchen table, ate his ice cream and had something to drink before he went back to bed.

At this point in time his skin color was normal and there were no spots or rash. I came back from my tennis just after 9am and checked on him as soon as I came home. At this point in time he was not warm like before but sweaty so I told him to put on some dry clothes while I changed his bedlinen. I told my husband that we probably should take him to the health care center later when they opened and after we had played tennis again.

At 11am my other son, husband and I went to play tennis and the last thing I did before we left was to check on him and he was sleeping. At 11:30 Mathias grandfather saw him and spoke to him in the kitchen while he was eating. He was complaining that he was not feeling well, but nothing more than that. His grandfather remembers that the last time he spoke to him was at 11:50.

At 12:08 we were back from playing tennis and I went to check on him. He was not in his bed so I looked around and found him in the bathroom flat on the floor face down lying out from the shower – he had apparently tried to take a shower maybe because he was sweaty but that we will never know.

At this point in time I could see that he had blue spots and a blue/red rash on his body, his lips were blue and he had a hard time to breathe. He responded when we talked to him, but only just.

We managed to get him up onto the toilet and while he was sitting there I realized that this was very serious and we had to support his head, his eyes were rolling around and he was struggling to get air.

I told my husband to call 112 (911 in Sweden) as we needed to get an ambulance quickly. They told us to put him onto the floor in recovery position, but when we did that he stopped breathing whereby I started CPR on him until we managed to get him back. He also had some cramps at that time.

The first responding car came after approx. 10 minutes around 12:30 and at this time he was still responding when they talked to him. The other 3 cars including 2 ambulances came shortly after that and at first he was breathing on his own, but then suddenly it all changed very rapidly. He stopped responding and we could see on the heartrate monitoring machine that this was not going well. While all of this happened I could see a teardrop coming from his eye and my youngest son heard his last word “mummy”.

At 12:45 both my husband and I noticed that his pupils became very large and that they did not respond to the flashlight. We have later got it confirmed that this was when his heart stopped, and even though they tried everything and gave him CPR in the ambulance and at the hospital during a total of 45 minutes they could unfortunately not save him.

Our lives changed in 24 hours from having a young happy healthy almost 18 year son who was supposed to take his driving license two weeks later and start on his final year at high school to being a family with -1 son alive.

Mathias cause of death was meningococcal meningitis (type W135) and sepsis and according to the doctors it spread so rapidly through his body because he was a very healthy person to start with. His body was fighting and fighting while the sepsis and the bacteria were spreading through his vital organs until he could not fight it anymore.

During the two months that have passed since Mathias died we have started a memorial fund that we will use to spread the information about meningitis and sepsis in Sweden as there is hardly any information about it here. No widespread information about the age groups that are at high risk or the symptoms and how quickly you have to react if you suspect that it could be meningitis or sepsis or about the two vaccines that exist.

Could our life have been different today if we had known about this and would we have given the vaccines to Mathias? Probably to be on the safe side.

If our story and us spreading the information as widely as possible can save just one other person it will all be worth it even though we will not get Mathias back.

Christine Bennborn September 2019

 

Lyssna på Podcasten Utan Dig där Christine berättar på svenska om det som hände sommaren 2019. Länk till Podcast Utan Dig


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